Senior Director, Patient Advocacy & Engagement

Why Join Us?

Be a hero for our rare disease patients

At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.

Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.

If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultradedicated – Your biggest challenges yield rare possibilities

The Senior Director will collaborate to develop and execute global & US strategy, with support and counsel for Regional Patient Advocacy & Engagement. The Senior Director may work on both disease specific advocacy, as well as enterprise engagement strategy. Focusing on advocacy to effect change, the Senior Director will work extensively with patients, caregiver and advocacy organizations and all key partners across Ultragenyx teams.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

• Build and steward authentic relationships based on respect, understanding and advancing patient focused priorities.

• Embed patient and caregiver perspective and strategic insights from our communities across business strategy, accelerating existing efforts and identifying new opportunities to meaningfully partner across the medicines lifecycle.

• Understand and navigate internal stakeholder engagement, ensuring plans reflect cross functional engagement; facilitating the compliant exchange of complex scientific information related to Ultragenyx areas of research, product development and commercialization.

• Partner closely with Government Affairs, Communications and Regulatory to ensure appropriate patient, caregiver and advocacy leader awareness of, and engagement with, regulatory agencies and policymakers on issues of access and reimbursement.

• Demonstrate leadership within the Patient Advocacy team, across Ultragenyx, and externally with the goal of fostering a best-in-class patient advocacy function.

• Oversee the patient advocacy budget, ensuring company resources are used efficiently and effectively, including the management of external strategic partners.

Requirements:

• 10+ years within the biotechnology/pharmaceutical industry

• 10+ years of patient advocacy experience; rare disease experience preferred

• Bachelor's degree is required

• Experience with working with patients, caregivers and advocacy groups across the medicines lifecycle

• Ability to summarize and communicate complex medical and scientific information using terms and concepts that are most relevant, understandable, and appropriate for rare disease communities

• Able to think strategically, with extensive tactical planning and execution experience

• Excellent verbal, written, and presentation skills (internal and external)

• Extensive knowledge of all appropriate regulatory, compliance and legal requirements

• Ability to travel 25%

#LI-CS1 #LI-Remote

The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.

This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.

Pay Range
$247,200—$305,300 USD

Full Time employees across the globe enjoy a range of benefits, including, but not limited to:

· Generous vacation time and public holidays observed by the company

· Volunteer days

· Long term incentive and Employee stock purchase plans or equivalent offerings

· Employee wellbeing benefits

· Fitness reimbursement

· Tuition sponsoring

· Professional development plans

* Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at [email protected].

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Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to: [email protected].