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Patient Engagement Manager

Ultragenyxpharmaceutical

United States - Remote (Remote - United States) Remote permanent

Posted: April 22, 2026

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Quick Summary

We are seeking a Patient Engagement Manager to lead our rare disease patients and advance our field by challenging the status quo and creating a new model of care.

Job Description

Why Join Us?

Be a hero for our rare disease patients

At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.

Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.

If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultrafocused – Work together to fearlessly uncover new possibilities

The Patient Engagement Manager is responsible for listening to and counseling patients and medical professionals, interpreting their specific needs and providing friendly, professional and well-informed answers to their questions. This position will work with patients, physician offices, partners and insurance companies to case manage all steps required to gain access to therapy.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

• Works closely with patient/family to case manage all steps required to gain access to therapy.

• Educate patient/family on reimbursement options.

• Acts as a liaison with medical offices.

• Work with Specialty Pharmacy and insurance companies to obtain reimbursement requirements information.

• Perform benefit investigations with insurance companies as required.

• Responsible for maintaining case history for all assigned patients in the CRM system.

• Provide back-up coverage for other Patient Engagement Managers (PEMs).

• Travel to required meetings and medical offices as necessary.

Requirements:

• 5 years of prior case management experience preferred.

• Ability to travel 20%.

• Prior reimbursement experience with ability to communicate complex reimbursement scenarios to patients and medical professionals preferred.

• Ability to problem solve complex reimbursement scenarios and recommend solutions.

• BA/BS in the life sciences or communications preferred.

• Ability to maintain composure and remain professional during difficult patient or medical calls.

• Individual must possess and portray strong emotional resilience.

• Ability to multitask, problem- solve and work independently.

• Individual must possess extraordinary positive attitude, exceptional listening skills, and strong verbal and written communication skills.

• Ability to handle sensitive information.

#LI-AL1 #LI-Onsite

The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.

This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.

Pay Range
$111,000—$137,100 USD

Full Time employees across the globe enjoy a range of benefits, including, but not limited to:

· Generous vacation time and public holidays observed by the company

· Volunteer days

· Long term incentive and Employee stock purchase plans or equivalent offerings

· Employee wellbeing benefits

· Fitness reimbursement

· Tuition sponsoring

· Professional development plans

* Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at [email protected].

See our CCPA Employee and Applicant Privacy Notice.

See our Privacy Policy.

It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.

Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to: [email protected].

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